• The Fountains Federation

FHS - Research at Aston University


Dear parent or caregiver,


A new research project is being carried out by Dr Joanne Tarver and Dr Jane Waite at Aston University, in partnership with the Cerebra Centre for Neurodevelopmental Disorders at the University of Birmingham. We wanted to let you know about this study so that you can decide whether you would like to take part. The research is a questionnaire study looking anxiety and well-being in families of autistic children (or syndromes associated with autism characteristics) with learning disabilities.


This research is being carried out to inform the development of a new parent-led intervention for anxiety in children with autism and learning disabilities. It is hoped that this intervention will be offered when children are seen by health professionals in the NHS. In the future, this intervention will improve well-being for autistic children with anxiety, particularly individuals who have communication difficulties.


In addition, if you have completed our recent online survey study about emotional well-being in people with learning disabilities, this study provides a unique opportunity to assess changes in emotional well-being before and during the Covid-19 pandemic.


If you would like to learn more about the new study and decide whether you would like to take part, the information sheets and questionnaire can be accessed and completed online (see back of this letter for details). Alternatively, you can request the information sheet and a paper copy of the questionnaire from Dr Joanne Tarver at Aston University (Telephone 0121 204 4386 or j.tarver@aston.ac.uk)


When the research team have analysed the information you send to them, you will be provided with a personalised feedback about the person you care for. When the research team have analysed the information you send to them, you will be provided with a personalised feedback about the person you care for.


If you are unclear about any aspect of the study or have any questions, then contact Dr Joanne Tarver (0121 204 4386; j.tarver@aston.ac.uk) at Aston University.


Thank you for your time.


Dr Joanne Tarver - Research Associate, Aston University


Dr Jane Waite - Lecturer and Clinical Psychologist, Aston University



Instructions for taking part online


Important information before you start the questionnaire online:


The information sheet for this study will be provided when you visit the link below. Please read this information sheet before deciding whether you would like to take part. The information sheet will provide details about how the research team will protect your data, as well as other important information about the study.


To access the questionnaire study online go to: https://tinyurl.com/y5cmg37f


Thank you for your support!

If you would rather request a paper copy of the questionnaire, please contact Dr Joanne Tarver (email: j.tarver@aston.ac.uk; telephone: 0121 204 4386).



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